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2nd Annual Butterfly 5K Run/Walk Fundraising Page

Amanda Lee

Amanda Lee

Hi Everyone!

I am so incredibly honored to be on the Board of Directors of the Daniela Conte Foundation. Thanks for visiting my page- please read below for my story!

I first met the Conte Family back in summer of 2017 as Gemma (Daniela's younger sister)'s counselor at Sunrise Day Camp, the world's only day camp for kids with cancer and their siblings- free of charge. That summer was life changing, so I spent 3 more summers after that at Sunrise as their counselor (including an amazing virtual version of camp we put together during 2020!). Over those years I have gotten to know Daniela, Gemma, their younger twin brothers Anthony and Matthew, as well as their parents Katia and Anthony, very closely. It has been so amazing to watch them grow every year and beat every obstacle that is thrown at them. They are all my heroes.

It breaks my heart to say that on March 2nd, 2020, at just 8 years old, Daniela passed away peacefully in her sleep. Daniela was a warrior - beating Embryonal Rhabdomyosarcoma three times before the monster returned for a fourth time. She was a very smart and vibrant little girl who inspired so many people around her. She has taught me what it means to be brave, how to be strong, and to always smile and spread happiness. I am so incredibly thankful to have gotten to know Daniela and spent so much time with her. She is forever in my heart.

Fast forward to April 2022, almost two years since we began the Daniela Conte Foundation. In this short time, we have fundraised to donate $30,000 to a Sarcoma Research Project at Cold Spring Harbor Laboratory, provide financial support to local pediatric cancer families, and send Daniela's Butterfly Boxes to children undergoing treatment and their siblings around the country. We continue to be dedicated to raising money for more promising and less toxic treatments for pediatric cancer and to providing financial support to more and more families.

Please consider donating, volunteering, participating in the 5K (there is a virtual option for my friends out of state!), joining my team, or just sharing this page with friends and family. Together, we can help make the lives of patients and their families a little less stressful and a little more cheerful, and work towards finishing Daniela's fight.


To learn more about the Daniela Conte Foundation, visit our website here:

Find us on social: @DanielaConteFoundation or @DanielaConteFdn


raised of $1,500 goal

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